This work examines the psychosocial impact of the changes that have occurred in cystic fibrosis management. It includes sections on: the aetiology, pathology, course and treatment of cystic fibrosis; personal perspectives; developmental considerations; the illness network; therapeutic approaches; and major contemporary issues such as transplantation, genetic screening and new therapies.
Indice testuale
Cause, course and management; the adult perspective; the child patient's perspective; the father's perspective; the mother's perspective; the well sibling's perspective; the partner's perspective; the caregiver's perspective; on giving the diagnosis; infants and preschool children; school age children; adolescents; transition; adults; reproduction and parenting; siblings; family relationships; the CF team and its dynamics; self-care; educating parents and families; family therapy and parental counselling; group counselling; individual therapy; behavioural approaches to feeding and eating; approaches to problems of adherence; terminal illness and bereavement counselling; genetic testing and counselling; new therapies and new challenges; transplantation - new hope and new dilemmas; ethical concerns.
